Monthly e-newsletter serving the celiac and gluten free community
Medical Myths & Milestones
This full day event will be held on Saturday April 1st at Four Points by Sheraton in Norwood, MA. It will include gluten-free breakfast and lunch. Don’t miss this opportunity to hear from these leading experts:
- Alessio Fasano, MD: The Spectrum of Gluten-Related Disorders
- Kate Scarlata, RDN: GF Alphabet Soup: IBS, FODMAPs, SIBO
- Dan Leffler, MD: Focus on Future Research and Treatment
- Sara Ahmed, DMD: Celiac Disease and Dentistry
- Debbie Mitchell, MD: Endocrinology Matters in Celiac Disease
- Keynote by patient advocate Tami Goldsmith
- Wendie Trubow, MD: Food and Mood: Good Intentions, Bad Outcomes
- Dascha Weir, MD: The Kids Speak
- Chef Oonagh: Cooking Demo
- Panel discussions with Ciaran Kelly, MD, Rupa Mukherjee, MD & Melinda Dennis, MS, RDN and Jocelyn Silvester, MD, PhD & Alan Leichtner, MD
Click here to see the agenda.
Register early to take advantage of early bird pricing and to save your seat at this event.
Sponsors & Vendors
- Visit with these vendors at Medical Myths & Milestones on April 1:
- Bite Me Cupcakez
- Celiac Center at Beth Israel Deaconess Medical Center
- Celiac Disease Program at Boston Children’s Hospital
- Center for Celiac Research, MassGeneral Hospital for Children
- Cucina & Amore
- Eva Ruth’s
- Five Journeys
- The Greater Knead
- Gluten-Free Foodbank
- Gluten Free Me Bakery
- Joan’s GF Great Bakes
- Milton’s Craft Bakers
- Nantucket Pasta Goddess
- New England Celiac Organization
- NJY Camps
- Onesto Foods
- Something Sweet Without Wheat
- Tate’s Bakeshop
- Veggie Fries
- Vibrant America
- Thanks to our Sponsor!
Monthly Group Meetings
Group meetings provide the opportunity to talk about managing celiac disease and living gluten free. There are no set agendas, pre-registration is not required and there is no charge to attend. Just drop in!
Visit our Monthly Group Meeting event page for the full schedule and location of each meeting. Contact the group leader if you have questions about any of the group meetings. Here is the schedule for the upcoming meetings:
- Attleboro, MA: March 14, 7pm
- Braintree, MA: March 28, 7pm
- East Greenwich, RI: March 21, 7pm
- Fall River, MA: March 8, 7pm
- Glastonbury, CT: April 5, 7pm
- Natick, MA: March 15, 10am
- *Special dinner! Westborough, MA: March 9, 6:30pm
- NEW! West Springfield, MA: March 7, 6pm
* The Westborough Monthly Group is meeting at the Westborough Ted’s Montana Grille on March 9, 2017. The address for Ted’s Montana Grill is: 400 Union Street, Westborough, MA. The meeting will start at 6:30PM. Interested in joining? Please RSVP to Mary at 215-859-8637 or by email.
The Boston area meeting is on hold. Should you have any questions or wish to meet with a group leader, please contact Lauren or Charlotte.
Other Upcoming Events
Don’t miss Celiac Disease: Medical Myths & Milestones on April 1!
The NECO Advisory Board will meet on April 24, May 22 and June 19 at 7:30pm. Contact Lee if you would like to attend or would like more information about what happens during these insightful and spirited evening meetings.
- Chef Shilpi, of EZ Compliments, is running many gluten free Indian cooking classes. Mention that you are a NECO member to get a $10 discount on registration.
The next Gluten Free North End Market Tour will take place on Saturday March 11.
The Celiac Center at Childrens Hospital of Philadelphia has a one-day, state of the art multidisciplinary education program on Sunday March 26 from 8:30 am to 2:00 pm. Registration is required and limited.
- Register through Newton Community Ed for Gluten Free Baking Easy as Pie, taught by Sharon Wanunu. Easy as Pie will meet on Wednesday March 8 from 10 am to 1 pm.
- Chef Oonagh is teaching a 6 hour class, demystifying gluten free baking at Southern Maine Community College in Portland, ME on Monday March 27 from 9 am to 3 pm. Overnight accommodations are available on campus at the Sea Point Inn. The day will start with gluten-free pastries and participants will make gluten- free pizza to go with soup and salad for lunch. The event will include lectures, demonstrations and hands on activities.
Celiac Disease and Gluten-Free in the News
- This CNN story questions, Gluten-free diets: where do we stand? and provides a history of celiac disease.
- Fierce Biotech reports that ImmusanT’s celiac disease immunotherapy passes first clinical test.
- Learn about Ciarán Kelly, MD, here. Dr. Kelly is leading one of the panel discussions at the Symposium on April 1st.
- Gluten Free Watchdog explains the troubling gluten testing data released by Nima.
- MassGeneral Hospital for Children’s CDGEMM study continues to enroll infants.
- Here is the story about how Cornell University secretly launched a gluten-free and nut-free dining hall.
- This article states that advanced automation means more trust in gluten-free products.
- This study confirms that gluten-removed beer may be unsafe for people with celiac disease.
- This article reports on a study conducted by the University of Illinois that questioned is Toxic metal at higher concentrations in gluten-free food?
- This Science Daily article reports new research shows gluten contributes to the development of a very rare, but deadly, blood cancer in a small group of celiac patients.
- Read about actress Jennifer Esposito on Living and Thriving with Celiac Disease
Are you a Boston Globe subscriber? If so, watch your email or your mailbox for information from the Globe about GRANT (Globe Readers and Non-Profits Together), a program offering Globe subscribers the opportunity to show their support for a non-profit organization at no cost. Please consider designating New England Celiac Organization as your preferred 501(c)(3) non-profit organization.
Click here to redeem your voucher. Thank you for supporting New England Celiac Organization!
Webinars and Podcasts
Listen to Dr. Alessio Fasano on the Theresa Nicassio radio show from February 27th.
The Celiac Project has some new podcasts covering a variety of relevant topics including positive blood screens and adult beverage reviews.
- Haribo gummy bears now state that the glucose syrup and dextrose may be derived from wheat. Haribo states “our allergen testing on Gold-Bears has indicated that levels of wheat are below the minimum threshold that the lab test method can reliably identify. However, out of an abundance of caution, we cannot guarantee that our Gold-Bears candies are either gluten-free or wheat-free.”
- Chef Myron soy sauces are labeled gluten free but contain wheat-based soy sauce. The product label and the Chef Myron website state that the wheat protein is broken down into amino acids during fermentation. Read the FDA statement about this and Gluten Free Watchdog’s take on it here. Many of these products are produced and labeled under other names as well. We advise that you always read labels and make informed decisions about your health.
Dining Out Notes
A member recommends the Cabin Restaurant in Middleboro, MA. John, the owner, has celiac disease, and there is an extensive GF menu including a dedicated fryer.
Check this article from Gluten Free Living for some tips on dining out.
Have you had a positive dining out experience that you’d like to share with others? If so, let us know.
- A member recommends quinoa meals by Cucina & Amore. They are available in several flavors including artichoke and roasted peppers, basil pesto and mango jalapeno. Cucina & Amore quinoa meals will be available at the Symposium; come and try them yourself!
- A member enjoys Katz GF English Muffins and stated that they are the first GF English Muffin she’s had with real “nooks and crannies.” They are available in plain or cinnamon raisin flavor.
- Schar has some new products, including Butter Cookies and Ricotta and Chard Ravioli which can be found in the freezer section of stores that carry Schar products.
- Several members recommend Yehuda gluten-free matzo. With Passover comes many great GF products; check your store shelves and let us know what you find!
- A member reported that Quaker has a new flavor of popped rice crisps – sea salt & lime. She packs them for a lunch snack.
- Saffron Road has some new GF frozen “bowls” such as grilled vegetable tortilla, Thai style mango chicken and Masala curry fish.
Recipe of the Month
Getting ready to cook? Snap a few photos of your recipe in process or the final yummy result, and submit them to be added to our website!
Congratulations to Kristin from Littleton, MA, who won the January giveaway, a copy of Coping With Celiac by Aileen Bennett.
Interested in becoming a sponsor of NECO? Click here