Monthly e-newsletter serving the celiac and gluten free community
Welcome to 2017! Goodness, 2016 was a busy year for NECO! Did you watch our 2016 highlights video?
We conducted a college survey and released a Survival Guide for GF college students, welcomed the Gluten Free Food Bank to our family and sponsored a summer intern at Beth Israel Deaconess Medical Center. We hosted 10-12 meetings every month, had the Brains, Bellies and Celiac event in October and are now working hard planning the next symposium in conjunction with the Celiac Center at Harvard Medical School.
The Symposium, Medical Myths and Milestones, will take place on Saturday April 1st from 8:00 a.m. to 4:00 p.m. Registration for Medical Myths and Milestones will open soon so watch our homepage for more details! Hope to see you there!
Yours in health,
Lee Graham, Executive Director
Medical Myths and Milestones
This full day event will be held on April 1st at Four Points by Sheraton in Norwood, MA. It will include gluten-free breakfast and lunch. Vendors will be present.
Speakers and topics will include:
- Alessio Fasano, MD: The Spectrum of Gluten-Related Disorders
- Kate Scarlata, RDN: GF Alphabet Soup: IBS, FODMAPs, SIBO
- Dan Leffler, MD: Looking Ahead in Celiac Disease Research and Treatment
- Ciaran Kelly, MD: What I’ve Learned from Patients
- Alan Leichtner, MD and Dascha Weir, MD: Getting the Word Out on Celiac Disease
- Wendie Trubow, MD: Food and Mood: Good Intentions, Bad Outcomes
- Chef Oonagh: Cooking Demo
- and more!
Register early to take advantage of early bird pricing and to save your seat at this event.
Winter 2017 Gluten-Free New England Magazine
NECO members and magazine subscribers, watch your mailboxes for the next issue of Gluten-Free New England, arriving in mailboxes in mid-January. Members can log in and view the magazine now.
Articles in this issue include:
- Kitchen Tools for Portion Control
- Medical & Science News
- Reactions to Gluten
- Winter Cook’s Corner
- Cashew Cheese, Butter or Cream & Recipes
- The Gluten-Free Foodbank: Good to Go
- Celiac Stories: Make Our Bodies Great Again
- and more!
Not a member? Sign up now to receive the magazine and discounted admission to Medical Myths & Milestones on April 1.
Monthly Group Meetings
Group meetings provide the opportunity to talk about managing celiac disease and living gluten free. There are no set agendas, pre-registration is not required and there is no charge to attend. Just drop in!
Visit our Monthly Group Meeting event page for the full schedule and location of each meeting. Contact the group leader if you have questions about any of the group meetings.
- Attleboro, MA: January 10, 7pm
- Augusta, ME: January 17, 6pm
- Braintree, MA: January 24, 6:30pm
- East Greenwich, RI: January 17, 7pm
- Fall River, MA: January 11, 7pm
- Glastonbury, CT: February 1, 7pm
- Natick, MA: January 18 10am
- Smithfield, RI: January 18, 7pm
- Westborough, MA: January 12, 6:30pm
- NEW! West Springfield, MA: February 7, 6pm
The Boston area meeting is on hold. Should you have any questions or wish to meet with a group leader, please contact Lauren or Charlotte.
Other Upcoming Events
The NECO Advisory Board will meet on Tuesday January 17 at 7:30pm. Contact Lee if you would like to attend or would like more information about what happens during these insightful and spirited evening meetings.
Chef Shilpi, of EZ Compliments, is running many gluten free Indian cooking classes in January and February. Mention that you are a NECO member to get a $10 discount on registration.
Register through Newton Community Ed for Soup’s On, a gluten free cooking class taught by Sharon Wanunu. Soup’s On will take place on Wednesday January 18 from 10 am to 1 pm.
Sur La Table is putting on a cooking class, Deliciously Gluten Free. Sessions will be held in Canton, CT, Boston, MA and Natick, MA as well as other locations across the country on January 11 and January 22nd. Click here for more information and to register.
The next Gluten Free North End Market Tour will take place on Saturday January 28.
Celiac Disease and Gluten-Free in the News
- This article professes Gluten-Free Coffee Flour Can Help Clean up the Environment
- This article states that ‘Hidden’ celiac disease is less common now in the US.
- The Celiac Project has a few new podcasts, which you can listen to here.
- New posts on the Mayo Clinic Celiac Clinic’s video blog include Tips for a Healthy Holiday Season and Joseph Murray, MD, discussing When Your Diagnosis of Celiac Disease is in Question.
- This article discusses the research going into creating a variety of wheat that might be safe for celiacs to consume. Science Daily discusses this possibility as well.
- The PubMed.gov abstract provides support for active screening for celiac disease in patients with Type 1 diabetes.
- This article questions, Has Wheat Gluten Changed Over Time?
- Read the University of Chicago Celiac Disease Center’s Year End Research Report.
- Celiac Disease Foundation’s Insight newsletter is available here.
- UCONN has extended its gluten free dining options and plans to use a GF vegan pizza crust for all pizzas made on campus.
Research Study Participants Sought
Dr. Ciaran Kelly, MD, at BIDMC Celiac Center is looking for biopsy-proven celiac patients (18-80 years old) who have been following a gluten-free diet but still have symptoms to participate in a research study.
This clinical research study is designed to evaluate whether taking digestive enzyme supplements can help reduce persistent symptoms in patients with celiac disease who are following a gluten free diet.
What will happen:
– Up to 40 days participation from first study visit to last study visit
– Blood work and visits with our doctors & dietician
– 3 visits at Beth Israel Deaconess Medical Center in Boston
– 34 days of study medication
– Weekly surveys
– Daily stool log
– Phone calls once every 2-4 days
– Parking in the BIDMC garage is covered
For more information, please contact:
Dr. Ciaran Kelly, MD
BIDMC Celiac Center
Research Donation Opportunity
Alessio Fasano, MD, and his team at the Center for Celiac Research at MassGeneral Hospital for Children are studying how undiagnosed celiac disease during pregnancy impacts a family for generations. Fasano is collaborating with the Child Health and Development Studies, a 50-year study based in the San Francisco Bay area that is sharing its study population of 15,000 families for this celiac research.
Donations are tax-deductible and 100% of the funds will go to the Child Health and Development Studies for the purpose of this collaboration with Dr. Fasano.
For more information or to make a donation, please click here.
Annual Appeal and Other Ways to Give
As NECO wraps up our annual appeal, it is a great time to remind members, friends and supporters of some alternative ways to support NECO.
United Way Giving
For many people, this is the time of year where employers launch their annual United Way campaigns. When participating in a United Way campaign, you have the option to direct your gift to a specific not-for-profit. Please consider selecting NECO as your gift recipient.
Company Matching Program
NECO has been fortunate to receive several gifts from members which in turn have been matched by their employers. Most companies have their match program guidelines, including specifics regarding match giving available on the company intranet site, in an Employee Guidebook or inquire through your Human Resources Department.
Shop Through Amazon Smile
Support us when you shop this holiday season! Amazon Smile will donate a portion of your eligible purchases to NECO. Simply select New England Celiac Organization as your preferred charity or follow this link.
When considering these options, you may need NECO’s corporate information as follows:
New England Celiac Organization
P.O. Box 600066
Newtonville, MA 02460
Not-for-profit tax id: 16-1616413
Primary Contact: Elizabeth Graham, Executive Director, 781-461-2405 or firstname.lastname@example.org
Dining Out Notes
A member recently went to Precinct Kitchen (in the Loews Hotel, corner of Stuart and Berkeley Streets in Boston) and gave it rave reviews. When she told them she has to eat gluten free, the manager said they were very conscious of that and in fact, the only flour they used in the kitchen was GF. The food was delicious and all the wait staff were friendly and helpful. Because it is in a hotel, Precinct is open for breakfast, lunch and dinner.
A member visited the White Mountain Hotel in North Conway, NH and found that most of their menu is głuten free and the staff is well-informed. She felt like she was being treated royally there.
A member stated that Shake Shack is now offering gluten free buns. Remember that the fries at Shake Shack are cooked with breaded items so are not considered gluten free.
A member shared that Starbucks is planning to offer a certified GF breakfast sandwich with smoked Canadian bacon and egg with reduced-fat cheddar cheese on roll (see image above). Click here to read about it.
Have you had a positive dining out experience that you’d like to share with others? If so, let us know.
Product Finds & Notes
Cinnamon Pebbles joins the Post cereal line-up of GF offerings.
A member noticed that Yoplait yogurt no longer states that it is gluten free on the packaging. We inquired about this and were told that the yogurt is still gluten free and the GF statement will return to the packaging on the next production run.
Recipe of the Month
Getting ready to cook? Snap a few photos of your recipe in process or the final yummy result, and submit them to be added to our website!
Congratulations to Lynne from Rehoboth, MA, who won the December giveaway, a copy of Real Life with Celiac Disease by Melinda Dennis MS, RD, LDN, and Daniel Leffler, MD, MS.
This month, you can win a copy of Gluten-Free Quick and Easy by Carol Fenster, Ph.D.
To enter, simply send us an email with your name and mailing address by January 13.
Interested in becoming a sponsor of NECO? Click here